Susanne was TIRED!!!!!! This was the fifth night in a row that she had been up every three hours to take care of Paxton's feedings. She was used to having this schedule for usually about three days in a row and then she would have some sort of relief. Unfortunately, that was not the case this week. She couldn't wait for Moppy to come over this evening.
Susanne was having difficulty getting up this morning, that was until one of her cats vomited up a hairball on the bed. She could not believe that she would have to wash her comforter once again. Her comforter had been washed more in the last month than she cared to remember. Her bed was getting used to being naked.
Paxton had a cardiology appointment today. He weighed 11 lbs, which was impressive. The cardiologist thought he looked stable so there was no changes to his current treatment plan for the moment. The next step would be to start taking him off of some of his medications once he began to outgrow the BT shunt. Once his oxygen saturation levels reached the danger zone, then it would be time to move forward with his reconstructive heart surgery. This scared Susanne too much to think about. She was okay with living in her little bubble for now.
Susanne got home with enough time to put Paxton down for a nap before his first occupational therapy session or at least that was what she thought. She listened to her voice mail messages on the home phone. Come to find out, she had one from the OT stating she was outside of the house for the therapy session and it didn't look like anyone was home. She mentioned that she left a message on Susanne's cell phone too. Susanne quickly checked her cell phone and realized that the battery had died sometime that morning. She immediately called the therapist to discuss what had happened. Susanne had thought the appointment was for 2:00 pm, but that was actually the time that the therapist came by the week prior to do the paperwork. The appointment was actually for 11:30 am, which Susanne was clearly unavailable for. Susanne felt horrible. She made sure to let the therapist know that her time was valuable to her and this was very unlike her to miss an appointment. Susanne often prided herself on how organized she was especially when it came to Paxton's care. Even though she knew that it was an innocent mistake, she was very hard on herself so much so that she got upset. The reason she was so mad at herself was that she had tried so hard over the last two months to get anyone to help her with therapy for Paxton. It had been a long, frustrating road to even find someone that was willing to take him on as a patient. Finally, when the first appointment day arrived, she messed up the time it was scheduled. Unfortunately, this prolonged the time for Paxton to receive services until the following week.
Paxton had a little bit of a rough day today. He had a lot of episodes of gagging and dry heaving especially prior to each feeding. Susanne could only gather that it was from a lot of secretions in his mouth that he was having trouble swallowing. Therefore, he would choke on his own saliva. It was difficult to watch because most of the time it would seem like he would panic. This resulted in him holding his breath and having the appearance of drowning in his own spit. Other than suctioning him, Susanne did not know what to do.
Moppy finally came over later in the evening. Now Susanne could rest.
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