Paxton slept really well last night. He usually woke up between 6:00am and 9:00am for a short time before he would go back down for his mid-morning nap, but not today. Today, he slept right up until the time that he had an appointment with one of his in-home nurses. The nurse had to wake him up to get a true assessment on how he was doing. Overall, she thought Paxton was looking great.
Susanne caught up on some much needed phone calls. She came across a few bills that seemed a little fishy. One was from her OBGYN's office from February. Susanne was not sure why there was still an outstanding balance when she had just spent the last seven months proving to her insurance company that they should be responsible for the cost of any charges associated with labor and delivery because she had met her deductible. When she called to inquire about this bill, they said that it was a fee for them to fill out the one page short term disability form. Seriously....they charge for someone to fill out a one page form. They claimed it was a law. Even though Susanne was infuriated at the situation, she decided it wasn't worth the fight and she got stuck paying this ridiculous fee. Next, she called the billing department at Children's Hospital Boston for a bill she received for a service date of 07-12-10. Susanne informed the woman that she was speaking with that the first time Paxton had been to their hospital was at the end of October. This clearly had to be a mistake. She was getting charged for an ultrasound of Paxton's heart, which was never done. If she wasn't paying attention, she would have been short a lot of money. Susanne was informed that the charge was for the cardiologist at their hospital reviewing an echocardiogram that was sent to them by Paxton's cardiologist. Susanne was confused that she would get charged for something that she did not give consent for. She also was quite upset that she was paying twice for the same test. In her profession, veterinarians constantly consulted with specialists about the more challenging cases. They were never charged and they definitely didn't charge the client. Susanne was just appalled.
Paxton's therapy appointment was cancelled today. Despite this, Susanne still stuck with the scheduled plan. It was a day that they were supposed to work on oral motor skills. Susanne decided to offer Paxton a new food. Today's featured menu item would be pureed butternut squash. Surprisingly enough, he enjoyed it. Even though he significantly struggled to swallow anything by mouth, he eventually got a little of it down. Baby steps were better than no steps at all. Slow and steady would win the race.
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