Hello! Goodbye! Hello! Goodbye!

Paxton definitely did not sleep through the entire night. The poor guy was up multiple times due to pain. He would start to become restless about an hour before his next dose of pain medication was due. Each time he made even the slightest peep, Susanne was up within seconds to settle him down. Scott, however, slept right through the commotion. He had a gift for sleeping through the loudest of noises. He had not quite figured out how to fine tune his "mom ears". Luckily for Paxton and Susanne, Moppy had experienced "mom ears". She woke up with Paxton's every move as well. This was helpful to Susanne because while she was holding Paxton to comfort him, Moppy could pull up the next dose of medication or retrieve anything else he may need like a receiving blanket, water to flush his tube, or a clean diaper. Susanne had managed for over a year to be able to multi-task and do all of this by herself. Now, she was realizing how awesome it was to have an extra pair of hands.

Once they were up and at em', Moppy spent the rest of the day working on stuff for her job. She worked downstairs in the kitchen so that Scott, Susanne, and Paxton could have some alone time. She felt that it was important for them to have a chance to be a family again. Susanne and Paxton were very sad about Scott leaving today. Even though had a great time together, the thought of him going was always looming over their heads.

Paxton had more energy today than he had over the last few days and he was actually interested in playing for a bit. He was interactive and even laughed for the first time since the surgery. It was the sweetest sound they had heard in a long time. Children were always so amazing. Even through the pain and the suffering, they always managed to muster up a smile or a laugh. This was by far what all parents of ill children depended on to be reassured that things were going to be okay. It was the only thing that provided comfort to them and gave them the strength to continue the fight.

After a full morning of play, Paxton eventually fell asleep on Scott's leg like he had become accustomed to lately. He fit perfectly in the space it created just like a missing puzzle piece. This was Scott's secret weapon if Paxton was ever upset. It was an instant pacifier for him for some reason.

After spending all day together, it was time for Scott to leave. It caused all of the old emotions they were so familiar with to resurface. They hated leaving each other. It was painful to always have to say goodbye just as they were getting used to each other again. They were familiar with the roller coaster ride of emotions, but they were ready for it to end. The empty feeling that arose in the pit of their stomachs was not a pleasant one, but they had to put their game faces on just like always.

It was a sad goodbye. Once Scott was gone, Moppy tried her best to distract Susanne. No matter what she tried, she could still sense her desolation. The only thing that could possibly do the trick was food. If this didn't cheer her up, then there was no hope left. They had been looking forward to ordering specialty hotdogs since the day they arrived in Boston. This was a must have for this evening. Unfortunately, the restaurant that served them was closed. This was the second failed attempt to get these tasty treats. It appeared that it was just not meant to be. Maybe the third time would be the charm.

Instead, they ordered food from Bertucci's again. They were pleased with the spaghetti and meatballs that they had ordered on the last trip up so they thought it would be a good choice. They learned from their previous mistake and decided to split one order of pasta this time. The portions they offered for one person could literally feed an army.

On their way back up to the room, they had to take the elevator because Paxton was in his stroller. They loved any opportunity to go up and down the elevator because of the response they would get from Paxton. He would laugh everytime the elevator would beep to indicate they had moved up a floor. It didn't even matter if he was tired or painful, he still managed to squeak out a little laugh. Priceless!

While they waited for their food to be delivered, they bathed Paxton. He had spit up a few times. He even had an episode of projectile vomiting, which made the cut for longest distance in the Guiness Book of World Records. Susanne thought that a warm bath would not only clean him up, but it had to be soothing. Hopefully, this would help him sleep better.

Paxton was ready for bed right away. He went down with no difficulties. Susanne and Moppy joined forces for his 9:00pm feeding. Now that he was on more medications, it took extra time to get everything set up. Susanne was shocked to see the cocktail of drugs that Paxton was on. He required seven different medications, six of which were due again at that feeding. She was worried that his stomach would already be too full by the time they were finished giving them and there would be no room for food. Poor guy!

After Susanne and Moppy finished taking care of Paxton and finished their dinner, they were both full, tired, and warm. This was the perfect combination to fall asleep. Susanne just had to fight the urge until she was able to set Paxton up with his continuous feeding for the night. She would need to try everything to stay awake for just a little bit longer.