Let the exhaustion begin...

Susanne had been doing so well with her new schedule...or so she thought. She had accidentally slept through her alarm twice overnight. This caused her to run behind schedule for the rest of the day. Her body must have been telling her she needed the sleep.

Paxton had his first appointment with his pediatrician this morning. Paxton weighed a whopping 7 lb 8 oz. Susanne could not believe how quickly he had grown. Overall, the doctor thought Paxton looked good. She was impressed with Susanne's knowledge of Paxton's medical history, especially since the discharge summary of Paxton's hospital stay was missing some key information. The doctor's main concern at this time was that the issues Paxton will face having Pierre Robin had been put on the back burner. She thought it was extremely important to start focusing on getting Paxton to be able to take oral feedings before he got too accustomed to the NG tube. She wanted to set Scott and Susanne up with a core set of doctors and therapists that would really motivate Paxton to take a bottle and possibly nurse. Before Susanne left the office, she was given a list of referrals to set up for Paxton. The main goal at this time was to work with him on oral feedings. The doctor had mentioned that she wanted to try switching Paxton back to breast milk sometime soon, especially since Susanne had been on the dairy and soy free diet for a sufficient amount of time. Susanne was advised to bring in a sample of Paxton's stool to check for the microscopic blood before switching his diet.

Once at home, Susanne spent the rest of the morning doing skin to skin contact with Paxton while he received his NG feedings. The nurse that had been checking in on him thought that this would make him associate feeling full and satisfied with his mother. He seemed to be content with this new set up.

Scott came home earlier in the afternoon. He was so excited to get there that he got a speeding ticket on his way. Oops. He brought Susanne lunch and they spent some quality time with their son. Later that day, Scott dropped off a sample of Paxton's stool at the doctor's office. Unfortunately, the test showed up positive for microscopic amounts of blood. This was not what they were hoping for, however, the good news was that this proved that it was not the breast milk that had been causing the positive results because Paxton had been on strictly Nutramigen formula for a couple of weeks. The pediatrician wanted to contact the gastroenterologist that evaluated Paxton in the hospital to discuss what the next step should be and see if this was enough cause for concern. They probably would not know anything until tomorrow.

In the meantime, Susanne took a nap while Scott did some work. Susanne really appreciated the extra sleep. It had definitely been hard to come by these days.

To complete their evening, Susanne and Scott watched a movie and ate dinner together. Once again, they were very thankful to have friends that had prepared food for them because it allowed for more quality time.