Leah was so kind to help out with the overnight schedule. Susanne set up the feedings and Leah disconnected them. This always helped Susanne out so much. Every little bit counted. Even though Susanne caught up a little on some much needed sleep, they both decided that today needed to be deemed a PJ day. Of course, Paxton never had a problem with this.
When Susanne went downstairs this morning to get everything ready for the six o'clock feeding, she realized that Maverick had urinated on the floor in two different places. This was uncharacteristic of him, but was somewhat expected with the medications he was currently on. Susanne decided to monitor him closely throughout the morning and that was when she realized that he had blood in his urine. Susanne was going to have to take him with her to work to test his urine for an infection. Hopefully, it would be straightforward and respond well to an antibiotic. She felt horrible that Maverick would have to take another medication since he was on five other medications already. He was a walking pharmacy.
Something else that Susanne noticed was that everytime she would sit down and start pumping, the doorbell would ring and this morning was no exception. Go figure. Susanne had an appointment with the coordinator from Early Intervention, which is a service that provides support to children with developmental delays or disabilities in their natural environment. The coordinator wanted to get Paxton in the system to receive home care from an occupational therapist as soon as possible since the discharge nurse at the hospital forgot to set this in place when Paxton was sent home. This mistake had cost Paxton to lose a lot of precious time and decreased his learning window greatly. It takes time for a therapist to become available for care through this program with the average being about a month after the patient signs up. Susanne was promised that everything would be done to get Paxton the help that he needed as quickly as possible. This was much appreciated.
Today, Susanne was back on track. She was energized about learning new techniques to try with Paxton from her sister. Aunt Leah worked with Susanne throughout the day on different approaches for non-nutritive and nutritive sucking. She was very informative and Susanne got a lot out of the time they had together. Susanne felt like Paxton had received a more thorough evaluation and more thorough care from her sister than anyone that she had worked with thus far. Only good things could come from that.
Leah got to witness Paxton smile for the first time. Paxton decided that his mama was finally funny enough to humor her. It was during an intense performance of Waddly-acha that Paxton mustered up the energy to give her a little smile. He did so a couple of times following that, but he was not giving them up freely. Susanne had to work hard for that, but at least she had a witness that it really happened.
Scott was supposed to get home earlier that afternoon to start off his weekend. Unfortunately, God had other plans. Susanne received a phone call from him stating that he was stranded about fifteen minutes from the house. Scott had been driving Susanne's car since the day that Paxton was discharged from the hospital because it just didn't seem right to install a car seat in the back of a two door sports car with bucket seats. This car had always been reliable, but today it decided that it just did not want to cooperate. The car overheated and stopped working. Scott was able to troubleshoot, along with the assistance of Poppy, to get it working just long enough to get it home. This was just what they needed...something else to worry about.
Sounds like Miller Time!
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