With Susanne operating on a limited amount of sleep from last night, she quickly realized how this could negatively effect the rest of her day. She was exhausted and having a hard time functioning. She was struggling with keeping organized and focused. Little things would slip her mind. She was thankful to have Leah there to help her out.
Aunt Leah fell in love with Paxton right away just like Susanne had expected. Leah especially liked how much he loved to talk. She could not wait to be able to snuggle with him since he had to go right to bed last night when Susanne and Paxton arrived home.
This morning Paxton had an appointment with the cardiologist. Susanne was always thankful to have an extra pair of hands when she had to leave the house to go anywhere. "Timm time" was at an all time high because there were two Timm girls in the house vs. just the one. For those of you that don't know this, the more Timm girls that you put together, the longer it takes for them to get ready, to get out of the door, and get to their final destination. Susanne was convinced that this was genetic.
Finally, they made it to their appointment. Paxton had an initial blood pressure, SpO2 level, and an ECG done when he arrived, which was what they always did when he saw his cardiologist. Overall, things were looking stable. The SpO2 level was still running high, but the doctor felt that this would change over the next few months. Once it started to drop, Susanne would have to keep an extra eye out for any evidence that Paxton wasn't getting enough oxygen. This was scary to think about. Paxton's cardiologist did a complete physical exam. She thought that he looked good with the exception of his poor weight gain. Just like the pediatrician, she too did not like the trend that was revealing itself. Susanne requested that the cardiologist look into feeding teams that she had used for other patients of hers that were in a similar situation as Paxton. Susanne thought that this would be the best next step since, so far, no one was able or willing to help her tackle the monster known as oral feeding.
Susanne and Leah were able to run a couple of errands before heading home to set up Paxton's next NG feeding. They already had to feed him once in the car on the way to his appointment so they wanted to try to make it home to avoid having to do it again. It was also critical that Susanne utilized her time well with Leah. Leah had a lot of things to teach Susanne, including different techniques that she could try when practicing the oral feedings with Paxton. So far, she showed Susanne different positions to have him in when feeding him and different ways to use the special bottle that Paxton needed. Susanne felt well informed and better equipped for taking on the challenge of oral feedings than she had since Paxton had been home. Hopefully, they would break ground.
Things were going smoothly overall throughout the day with the exception of one little bump in the road. Susanne had been suffering from a blocked mammary duct since the night before. Susanne had first noted the problem when an area on her chest became very painful. The area that was tender was firm and warm to the touch. Susanne was thankful to have Leah around because she had been through this before and her advice was much needed. Susanne started to become concerned about getting mastitis once she noticed a change in her skin color, but after following through with Leah's recommendations, it appeared to clear up within the next 24 hours. Susanne got a kick out of the similarities between her and those of a milking cow. She felt like there were too many to count at this point. Moo!
Susanne and Leah spent a lot of time working on a summary of Paxton's history. This proved to be a bit more challenging than they had originally thought. Even though they stayed up really late until it was completed, they were sure this would benefit Paxton and his doctors greatly in the long run.
Goodnight all!
No comments:
Post a Comment