To Pee or Not To Pee

Paxton had an appointment with his pediatrician at 7:45 am this morning. He weighed in at 7 lb 12 oz, which seemed like an impressive amount of weight gain to Susanne. Unfortunately, the pediatrician thought otherwise. She wanted Paxton to be gaining about one ounce per day instead of half of an ounce per day. She was concerned that he may be burning off too many calories due to his heart being stressed and overworked with just normal activity. She was also concerned that his oxygen saturation levels were still in the nineties despite being on medication that was supposed to help bring the value down. Susanne had also noticed that Paxton had begun coughing more than normal over the last few days. Even though it was a dry cough and his lungs sounded clear, the doctor was concerned that he may be getting too much blood flow to his lungs. This could in turn cause leakage of the vessels and ultimately result in fluid build up in the lungs. The pediatrician wanted to contact the cardiologist to discuss what should be done. Paxton still did not have a speech therapist set in place to help them work on his oral feedings. The pediatrician was having a hard time finding a practice in this area that had a lot of experience with children that have Pierre Robin. Susanne was frustrated that Paxton was losing precious time because there was not the appropriate therapists set in place.

Luckily, Susanne was able to take a thirty minute nap later in the day. She ended up snuggling up with her son, which made it that much better.

Most of the day, Susanne spent time trying to complete some of the things on her to do list. She found that it was difficult to accomplish with having a little one to look after. It seemed to work best for her to choose a couple of things off of the list and do a little bit intermittently so by the end of the day at least something would have been completed.

The pediatrician contacted Susanne at the end of the day to inform her that the cardiologist wanted to put Paxton on Lasix, which is a diuretic. Susanne can't wait to change more diapers.

Fortunately, Paxton's follow up with the cardiologist is on Monday. Susanne is anxiously awaiting this appointment so that she can know how Paxton's heart is holding up.