Desperate Times Call For Desperate Measures

Paxton decided that he was going to catch up on sleep today. Susanne was noticing that whenever she had to take him outside of the house for anything, he would spend the next few days recovering from that stressful change. He did a good job of letting his mommy know when he needed to catch more Zs.

During the day, whenever Paxton was awake, Susanne made sure to utilize the time wisely. She worked on many different exercises with him and even practiced some baby massage. She made sure to make plenty of time to be silly. She got him to smile a lot and she almost even made him laugh. She tried to get it all on video, but she quickly realized that this was a bit of a challenge. The reason that it was so difficult was that what Susanne was doing to make him smile so much required two free hands. It was quite comical. Susanne was so excited that Paxton had met this milestone. She could not wait to show Scott how much he was smiling. It was very rewarding.

When Paxton napped in the afternoon, Susanne finished cooking some of the things that she didn't get to finish the other day. She baked two loaves of banana bread which turned out better than expected. Despite having things like applesauce and molasses in it, no one could even tell. This was great news for Susanne.

Susanne spent the rest of the day trying to tie up any loose ends before the whole family headed up to Cincinnati Children's Hospital Medical Center on Sunday. She had been consulting with Kelly, a close family friend that was an occupational therapist at CCHMC, from the day Paxton was discharged from the hospital. She and Leah, Susanne's oldest sister, had been the only therapists willing to work with Paxton and try to find a solution to his oral feeding difficulties. They had lent their expertise and knowledge on multiple occasions and were both getting extremely frustrated with the lack of concern that the other providers were showing. Kelly had been keeping the doctors at CCHMC abreast of Paxton's situation and trying to get any advice she could find on what could be done for the poor guy. She had offered multiple times for Scott and Susanne to bring Paxton up there for an evaluation if they were interested. Finally, Scott and Susanne had reached a breaking point and decided it was time to take matters into their own hands. They desperately wanted a team of medical professionals to take Paxton under their wings and help manage his multiple medical issues. Susanne was tired of everyone just focusing on their specialty and forgetting the other problems that were contributing to Paxton's overall failure to thrive. The team at CCHMC claimed they could do this for Paxton, so it was the only logical next step.