Paxton listened to his mama. The pep talk from yesterday to fight for his life must have worked because when Susanne called to get an update at midnight the nurse informed her that he had pulled out his ventilator tube all by himself. He did well all day without having to have it replaced. Everyone is watching his oxygen levels, heart rate, and respiration rate closely, but so far so good. This was going to be the next step after the heart issue had been figured out, but he decided to hurry things along. His little tongue does get caught up in his cleft palate, but he is able to breathe around it. The doctor made sure to inform Susanne not to get her hopes up yet. He may still need a tracheostomy at some point, but it may not be absolutely necessary. It is just too early to tell. The best part about his ventilator tube being out is that the nurses felt comfortable enough for Susanne to be able to hold him while they switched out his isolette. He did so well during the transition that they allowed her to hold him for over an hour. =) Susanne was beside herself with joy and loved every minute of it even though she had to wear a gown and gloves. We reached yet another milestone today. Susanne got to hear Paxton cry for the first time. Most parents would think that this wasn't something to be excited about, but it was music to Susanne's ears. She made sure to get lots of video of him crying so she could share it with Scott. Later in the day, Susanne had lunch with her good friend Cory. It was nice to catch up and to have someone so special give her support. Susanne later returned to the hospital just in time to sit with Paxton while he was still awake. She loves when her precious baby looks into her eyes. Susanne felt really connected to her son today. She officially feels like a mother now. What an awesome feeling. Paxton and Susanne can't wait for Scott to come home tomorrow night. They miss him so incredibly much...you don't even know. Other than it taking Susanne two hours to get home tonight, it was the perfect day.
8 comments:
Crying...again, go figure. Tears of joy this time. What a wonderful day. He's a strong little guy just like his parents. Love seeing him with his eyes open, he's beautiful, and you with a smile on your face holding him makes it perfect. Love you guys so much and am very excited to see he is doing so well!
Yea! I am so glad you were able to hold him for so long!! What a tough little guy! He was tired of the ventilator, I don't blame him! Stay strong Paxton!!
Well we know Paxton is going to be super smart like his mom and dad because he is already advocating for his own health care! :) What a fighter!!!!
I knew yesterday was a good day when I saw a nice smile on Shelley's (Grandma) face this morning at the office. Way to take charge, Paxton! there's a very big world out here rooting for you and praying for you and your parents.
Jeanne LaBella
APPA
About time for some good news, right? Way to get your little booty in gear Paxton. Mommy and Daddy as well as all of us needed that. I am so excited you got to hold him and have some great bonding time together. Hope Scott will get the same luxury this weekend. Not sure who I think he looks like yet. What I do know is that he is PRECIOUS!!! Let's see you 2's baby pics:) Enjoy your weekend as a family!!! We love you!
Just wanted to let you know I think about you all the time, and I hate being so far away. Paxton is a fighter and a looker! : )
Prayer will help you through this. Continue showering Paxton with love and leave the rest to God. Love you guys and can't wait to start teaching Paxton some Spanish! xoxo
Susanne, Scott, and Baby Paxton,
I have a verse for you - Jeremiah 29:11. "For I know the plans I have for you .... plans to prosper you and not to harm you, plans to give you hope and a future." God chose you to be Paxton's parents because He knew that you had the faith and the strength to see him through the challenges that lie ahead. I know how hard it is for you to have to leave him behind at the hospital because we had to do the same thing for Joy and SB, but that was only for about a month and OMH was only a few minutes away. Although you may have to do it for a little longer, I have NO doubt that you will soon be taking Paxton home where he belongs! You are in our prayers EVERY day and I have you on the prayer list at TUMC. WE LOVE YOU!!!
Mrs. Susan, Mr. Michael, Joy, & Sarah Beth
P.S. He is BEAUTIFUL!! SB and I thought from the very first pic that he looked like Walter (AKA Poppy), but he obviously got his hair from his handsome Dad!
Paxton is beautiful!! Your faith and strength is shining on him without a doubt. The Lord hears your calls...you are never alone! Rom 12:12 "Be joyful in hope, patient in affliction, and faithful in prayer." I am so thankful to Leah for setting up this blog for all of us who hold you so dear so we can be updated on your precious Paxton. I love you so very much!
Post a Comment