Paxton had a good day. His color was looking much better and he appeared to be more alert. He actually looked at his mom for a little while which made her smile. Overnight, the doctor heard some crackling noises when he listened to Paxton's lungs with a stethoscope. The doctor took some x-rays to assess the chest which confirmed evidence of fluid accumulation in the lungs. Paxton was given a dose of Lasix, which is a diuretic that helps to remove some of that fluid build-up. The medication seemed to make him feel better. The follow up bloodwork continued to look good so the surgeon decided to put Paxton on the surgery schedule for Friday. Scott and Susanne are still very nervous, but excited to move on to the next phase of Paxton's journey. Susanne has made sure to take every opportunity to snuggle with Paxton when she can because she knows after the surgery it will be a few days before she can hold him again. Paxton continues to thoroughly enjoy the kangaroo care and sleeps very soundly when he is in his mother's arms.
Scott and Susanne will be staying at the Ronald McDonald House Thursday evening so they can make sure to be available early Friday morning before the surgery. The nurses and doctors have prepared Scott and Susanne for a critical window of three to four days post surgery. It is during this time that Paxton will let us know if he handled the procedure well and if that surgery is all that is needed for the moment. The nurse made sure to tell them that post-surgery, instead of taking it one day at a time, they should take it one hour at a time.
"Be strong and courageous. Do not be terrified; do not be discouraged, for the Lord your God will be with you wherever you go." Joshua 1:9
3 comments:
Carter's Mommy sent the link to your blog about Sir Paxton. He is absolutely adorable! He looks like a little warrior!
You all are in my thoughts and prayers,
Elizabeth
We are thinking of you, Scott, and your little miracle every day. I'll light and candle for Paxton early Friday morning!
Love and best wishes for a successful surgery!
MaryBeth (Johnson) Jones
Leah sent us your blog information and we've been following since then. I emailed her our contact info so please don't hesitate to contact us if you need anything or have any questions about life in the NICU. We spent 115 days there with Carter and one of the best pieces of advice I can give you is to be an advocate for your child. If you don't think something is right, speak up! If you don't understand, ask questions. If you are getting conflicting info, ask for a meeting. Don't just accept what they tell you b/c they are the Doctors, especially if you don't agree.
Brad, Kellie & Carter
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