Scott and Susanne feel that they are the kind of people that have always had to work hard for everything. Nothing has ever been handed to them. Going through this difficult time makes them wish for a simpler life. They dream of having a house on the water like in "The Notebook", having lots of land for their dogs to run around on, going out on their boat on the weekends, Jimmy Buffet music playing in the background, margaritas, Coronas, having ice cream for breakfast, going to church on Sunday, hanging out with family and friends, dancing under the stars, waking up in each other's arms, and the list could go on. When dreaming of all of these things, they both envision Paxton being with them through it all. They cannot wait to get him home and start working on their much simpler life.
Scott and Susanne's little boy is growing up so quickly. Today, he is three weeks old. Time is definitely flying by. He continues to gain weight which is awesome. He weighed 6 lbs. 8 oz. today. The doctor informed Susanne that Paxton's white blood cell count was improving. This was a good sign. It still was not within the normal reference range, but it looked much better than yesterday. The other good news was that the blood culture continues to be negative. Also, the cardiologist assessed Paxton today and was happy with how stable he was looking. All of these things will help get Paxton one step closer to getting his much needed heart surgery.
Susanne got to hold Paxton again today. She thinks that it is the most amazing feeling in the world. Paxton appears to be most comfortable when he lies on his right side with his fist up near his face. He sure loves to sleep and cuddle with his mom. Susanne had a wonderful visit with her baby boy and cannot wait for the next time she can see him.
Later in the day, Susanne received a phone call from the cardiologist informing her that the surgeon would like to see the white blood cell count a little lower before moving forward with the surgery. The surgeon will have a better idea what day he would like to schedule the procedure after they recheck the bloodwork tomorrow. Susanne and Scott are anxiously awaiting the big day. They hope that the surgery will make Paxton feel much better.
One of Paxton's favorite nurses gave him a book today called, "I Love You More Than Rainbows." Scott and Susanne thought that this was very thoughtful and it brought some welcome smiles on Paxton's birthday.
3 comments:
Happy 3 week birthday little boy. You are getting so big and we think you are absolutely precious. You keep soaking up all those snuggle moments with your mommy and daddy and get strong so you can have your surgery. You look so peaceful when in their arms. We can't wait for you to get well enough to go home so we can meet you.
Yea! I'm glad his blood count is getting better! I'm so glad that you have been able to hold Paxton. I'm always thinking of you guys!!
Even though Paxton did not have his surgery on Monday, all of those prayers did not go to waste!
I like to think of his WBCs as his own little army making sure that there are no foreign invaders to get in the way of a successful surgery. Susie, I saw Dr. Sheegog at the Bloodmobile today and he sends you his love and prayers. LOVED the pic of you and Paxton in the kangaroo chair! He obviously loves his Mommy just like we do! He was so smart to pick you two to be his parents! LOL. Love to you all!
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