This whole experience is such a roller coaster of emotions. Some days are easier than others, today being one of the more difficult ones. There has been no progress in the plan of action and we are growing more and more eager to know what the next step will be. To top it all off, Paxton has had a different nurse each day since the weekend. Today's nurse was a bit rougher with Paxton than we would have liked and it didn't seem as though she really knew the protocols of the NICU very well.
Another heart ultrasound was performed this morning which showed no changes. The doctors think it will be another 7 to 10 days before we will be able to determine what to do with his heart condition. They are not even going to address his airway issues until the plan of action for the heart condition is determined.
We did get some information today regarding Paxton's genetic tests. His chromosomal panel came back normal, which was consistent with the amniocentesis that was done during her pregnancy. Any bit of positive news is good at this point.
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